A long break...but here we are back at it!

It's been a long break since I've been on Prognosis Happy.

Kiefer is still our amazing little boy.  The resilient, easy going, big hearted guy we gave birth to.  He is progressing well through his therapy - both speech and ABA.  His medical condition progresses too.  Recently we have up'd his dose of valproic acid to include a lunch time dose as well.  So now we administer zarontin morning, noon and afternoon, as well as a valproic acid pairing with each of those doses.

Kiefer is now in after school taekwondoe and since they couldn't promise a 'consistent' administering of his meds we wait until he is home to do it.  (He LOVES taekwondoe by the way!!)  The benefits we have seen are that he is sleeping MUCH better - which makes for a much less tired Kiefer during the day.  We didn't realize how powerful the benefit of undisturbed sleep would be.  He seems to focus better during the day, sleep IN more (YAY!!! for sleep ins!!!) and that means we all sleep better.  HUGE benefit.

I've been going through my own health journey for the last year and recently it's come to a head.  Not really ready to share details yet, but I'm actually excited for what's in store and setting not only myself, but our entire family up for better health.  Healthier meals, more movement and a happier family.

Just a quick update for now.  When I have some time I'll share our recent experience at Sick Kids participating in a trial.

Thanks for stopping by!