Another change in our "normal"

I seem to be obsessed with the word "normal".  Maybe it's because there is NOTHING normal about me.  I mean right from birth.

I was born to a 16 year old mother who had a few too many drinks at a party and had sex for the first time.  Yup FIRST TIME.  She got pregnant and concealed her pregnancy from her parents for 7 months.  SEVEN MONTHS.  Finally they called her into their room to talk and said, "Look we know you're pregnant we just don't know how far along you are".  I can only imagine the look on their faces when my birth mom told them '7 months'.

My birth was quick.  I was born within a few hours.  They put my mother out for the final push and she never got to hold me.  I was whisked away as quickly as I had come into the world.  My birth mom only got to look at me through glass.  She changed her mind and wanted to take me home, but at only 16 years old, what was she going to do with me?  Really?

I was given up for adoption and placed into my family.  I couldn't have chosen better parents.

But that's not a "normal" story, now is it?

Kiefer was given a third medication to take, along with the other two he takes 3 times a day.  This new medication is a bedtime medication.  So he takes it after he's had three doses of 2 medications during the day.  This new medication is supposed to help further with the seizures, but also help with sleep.

If someone told me I would survive waking up through the night for 9 years I would have laughed in their face.  If someone told me, that I wouldn't get a full nights sleep unless I was on vacation without my kids for 9 years I'm not sure I would have had another kid to be honest.  I LOVE my sleep.  Always have.

But I wouldn't change having Kiefer for the world.

While my heart was breaking as we took another big step away from 'normal', Kiefer kept to his happy go lucky self!

We decided to visit Daddy after the appointment and he took us to the mall for lunch.  Kiefer didn't even care about the food - he cared about us - spending time with us and being the center of our focus.  Even if, for just a few short hours.

He comes with struggles, and makes me wonder what 'normal' even is.  But he has such a big heart, he loves everyone so unconditionally and he inspires me to be a better mom and a better person.
He has changed my life in so many ways and I would fight dragons for him.  He brings a joy to my life I didn't even know was possible.

So yeah, our 'normal' is anything but.

I may be a little overwhelmed, and emotional, but I still see that I am so blessed. 
💛